Resources by Disability
TYPES OF DISABILITIES
ADHD/ADD
Children and Adults with ADD (CHADD) – Provides education, advocacy and support for individuals with AD/HD. (800) 233-4050
ANGELMAN SYNDROME
Angelman Syndrome Foundation – Advances the awareness and treatment of Angelman Syndrome through education and information, research and support for individuals, their families and other concerned parties. (630) 978-4245
AUTISM
Autism Center for Excellence at VCU – Provides technical assistance, training, and research for Autism Spectrum Disorders. (855) 711-6987
Autism Society of America-Virginia Chapters – local chapters provide newsletters/newsblasts; monthly meetings; lending library; parent support; and trainings and educational information for anyone interested in autism spectrum disorder.
Central Virginia Chapter — (804) 257-0192
Northern Virginia Chapter — (703) 495-8444
Tidewater Chapter — (757) 461-4474
Autism Society Tidewater Regional Resources Map
Commonwealth Autism – Provides information and referrals, training and much more. (800) 649-8481
BLIND/VISUALLY IMPAIRED
Virginia Department for the Blind and Vision Impaired – Empowers blind, visually impaired, and deaf blind individuals to achieve their maximum level of employment, education and personal independence. (800) 622-2155
American Foundation for the Blind – (800) 232-5463
National Federation of the Blind – (410) 659-9314
Virginia Department of Education Blind/Visually Impaired
BRAIN INJURY
Brain Injury Association of Virginia – Can train persons with brain injury, family members and professionals how to advocate for their needs through their advocacy academy training sessions which focus on how to self-advocate with insurance companies, doctors and school systems. (800) 334-8443
CEREBRAL PALSY
United Cerebral Palsy – The leading source of information on cerebral palsy. (800) 872-5827
Care Connection for Children – Care coordinators who can work closely with children and their families to provide targeted, comprehensive and culturally appropriate care.
DEAF OR HARD OF HEARING
Virginia Early Hearing Detection and Intervention (EHDI)
Virginia Hearing Aid Loan Bank: The purpose of this program is to provide temporary hearing devices for children within the Commonwealth of Virginia, who are under the age of 21 years and diagnosed with a hearing loss. These devices are TEMPORARY and maybe used while parents/guardians are working to obtain funding to purchase aids for their child.
An Audiologist needs to submit the application by fax at 434-924-0390.
If you have questions, contact the Virginia Hearing Aid Loan Bank at 434- 924-0222 or 1 866 596-9367.
Virginia School for the Deaf and the Blind (VSDB) serves as the hub of expertise in Virginia for the education of students who are deaf/hard of hearing, blind/vision impaired, deafblind, and blind or deaf with other disabilities. They serve children in Virginia from birth through 22 years of age. There are many resources that can be found under “Outreach and Family Engagement” on their website.
The Virginia Deaf Blind Project (VDBP) is committed to supporting families, teachers, and service providers in their endeavors to improve outcomes for children and youth who experience both vision and hearing loss.
Virginia Department for the Deaf and Hard of Hearing (VDDHH) promotes accessible communication so that persons who are Deaf and Hard of Hearing may fully participate in programs, services and opportunities throughout the Commonwealth.
Laurent Clerc National Deaf Education Center: A federally funded institution offering academic programs to the diverse population of deaf and hard of hearing students across the nation by providing early intervention services, sign language classes, and uniquely designed resources for deaf and hard of hearing communities. The Laurent Clerc Center is located on the campus of Gallaudet University in Washington, D.C.
Parents’ Guide Shared Plan of Care
Virginia Resource Guide for Families of Children who are Deaf/ Hard of Hearing
Virginia Resource Guide for Families of School- Aged Children who ae Deaf/ Hard of Hearing
American Academy of Pediatrics/ EHDI Vocabulary Outcomes
Boys Town National Resource Hospital’s Resource for Families of DHH Children
A Family’s Guide to Audiology Services, Hands and Voices
What is an Audiogram: understanding your child’s hearing assessment results
Supporting Survivors Who are d/Deaf or Hard of Hearing Training Module: created by the “Ensuring Accessibility to all Survivors” project, this training module features an overview of how to recognize abuse, how to support someone when they disclose, and resources available to support survivors who are d/Deaf or Hard of Hearing.
This training is designed for Deaf/ Hard of Hearing Specialists in collaboration with the Virginia Department for the Deaf and Hard of Hearing. Contact Jackie Robinson Brock with any questions on this module/ project at: robinsonjb3@vcu.edu
Congenital CMV Resources:
Early Hearing Detection and Intervention (EHDI) Cytomegalovirus (CMV) Resources
Assessment and Management of congenital Cytomegalovirus (cCMV)
U.S. Centers for Disease Control and Prevention
DOWN SYNDROME
The Arc of Virginia – Affiliated with The Arc of the United States and serving as the state chapter in Virginia, they help people with disabilities, family members, friends and others become advocates themselves. (800) 649-8481
Down Syndrome Association of Greater Richmond – Organization run by parents that provides supports and resources. (804) 447-4713
INTELLECTUAL DISABILITIES
The Arc of Virginia – Affiliated with The Arc of the United States and serving as the state chapter in Virginia, they help people with disabilities, family members, friends and others become advocates themselves. (800) 649-8481
MICROTIA/ATRESIA RESOURCES:
Ear Community is a nonprofit organization that helps children and adults who are born with Microtia and Atresia (when someone is born missing one or both of their ears and has no ear canal(s) resulting in hearing loss).
RARE GENETIC DISORDERS
Unique – A source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide. Membership of Unique is free.
Chromosome Disorder Outreach – A nonprofit organization that is founded, supported and run by parents. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations and rings. Family Helpline (561) 395-4252
SPINA BIFIDA
Spina Bifida Association – A great resource that provides high quality, confidential information and referral services with chapters in every state.
TOURETTE SYNDROME
National Tourette Syndrome Association – Offers resources and referrals to help people and their families cope with the problems that occur with TS. Membership includes individuals, families, relatives and medical and allied professionals working in the field.
Tourette Syndrome Association of Greater Washington – A website with information for Washington D.C., Virginia and Maryland.
700 East Franklin Street
P.O. Box 843020
Richmond, Virginia 23284-3020
FAX: (804) 828-0042
TTY RELAY: (800) 828-1120
HELPLINE: (877) 567-1122
EMAIL: cfihelpline@vcu.edu