Resources by Disability
TYPES OF DISABILITIES
ADHD/ADD
Children and Adults with ADD (CHADD) – Provides education, advocacy and support for individuals with AD/HD. (800) 233-4050
ANGELMAN SYNDROME
Angelman Syndrome Foundation – Advances the awareness and treatment of Angelman Syndrome through education and information, research and support for individuals, their families and other concerned parties. (630) 978-4245
AUTISM
Autism Center for Excellence at VCU – Provides technical assistance, training, and research for Autism Spectrum Disorders. (855) 711-6987
Autism Society of America-Virginia Chapters – local chapters provide newsletters/newsblasts; monthly meetings; lending library; parent support; and trainings and educational information for anyone interested in autism spectrum disorder.
Central Virginia Chapter — (804) 257-0192
Northern Virginia Chapter — (703) 495-8444
Tidewater Chapter — (757) 461-4474
Autism Society Tidewater Regional Resources Map
Commonwealth Autism – Provides information and referrals, training and much more. (800) 649-8481
BLIND/VISUALLY IMPAIRED
Virginia Department for the Blind and Vision Impaired – Empowers blind, visually impaired, and deaf blind individuals to achieve their maximum level of employment, education and personal independence. (800) 622-2155
American Foundation for the Blind – (800) 232-5463
National Federation of the Blind – (410) 659-9314
Virginia Department of Education Blind/Visually Impaired
BRAIN INJURY
Brain Injury Association of Virginia – Can train persons with brain injury, family members and professionals how to advocate for their needs through their advocacy academy training sessions which focus on how to self-advocate with insurance companies, doctors and school systems. (800) 334-8443
CEREBRAL PALSY
United Cerebral Palsy – The leading source of information on cerebral palsy. (800) 872-5827
Care Connection for Children – Care coordinators who can work closely with children and their families to provide targeted, comprehensive and culturally appropriate care.
DEAF OR HARD OF HEARING
Virginia Department for the Deaf and Hard of Hearing – (800) 552-7917
Virginia Hearing Aid Loan Bank – Open to children under the age of 18 whose hearing loss is confirmed by an audiologist. The bank lends hearing aids and FM systems for up to six months.
Technical Assistance Center for Children who are Deaf or Hard of Hearing – Information and technical assistance for children in the school system who are deaf or hard of hearing.
Virginia Department of Education: Deaf and Hard of Hearing
DOWN SYNDROME
The Arc of Virginia – Affiliated with The Arc of the United States and serving as the state chapter in Virginia, they help people with disabilities, family members, friends and others become advocates themselves. (800) 649-8481
Down Syndrome Association of Greater Richmond – Organization run by parents that provides supports and resources. (804) 447-4713
INTELLECTUAL DISABILITIES
The Arc of Virginia – Affiliated with The Arc of the United States and serving as the state chapter in Virginia, they help people with disabilities, family members, friends and others become advocates themselves. (800) 649-8481
RARE GENETIC DISORDERS
Unique – A source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide. Membership of Unique is free.
Chromosome Disorder Outreach – A nonprofit organization that is founded, supported and run by parents. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations and rings. Family Helpline (561) 395-4252
SPINA BIFIDA
Spina Bifida Association – A great resource that provides high quality, confidential information and referral services with chapters in every state.
TOURETTE SYNDROME
National Tourette Syndrome Association – Offers resources and referrals to help people and their families cope with the problems that occur with TS. Membership includes individuals, families, relatives and medical and allied professionals working in the field.
Tourette Syndrome Association of Greater Washington – A website with information for Washington D.C., Virginia and Maryland.
700 East Franklin Street
P.O. Box 843020
Richmond, Virginia 23284-3020
FAX: (804) 828-0042
TTY RELAY: (800) 828-1120
HELPLINE: (877) 567-1122
EMAIL: cfihelpline@vcu.edu